We have had a very interesting couple of days, to say the least. Eva was being treated for a double ear infection and was on day 9 of amoxicillin on Wednesday, when she broke out in this rash in her diaper area. I immediately made an appointment to see the doctor (because that's the kind of mom I am) for that day. At that point, the rash was starting to spread up her abdomen a bit, but was still covered by her clothes. After seeing the doctor, she advised us to take Eva off the amoxicillin immediately and to come in if anything changed. She wasn't sure at that point that this was the cause of the rash since it hadn't developed too much. We kept her on Benadryl all
doctor again first thing in the morning and was able to get her in...again. This time, my experience was a little different. I stood in line to check her in and was immediately overwhelmed with grown women STARING. I found myself starting to become self-conscious because for some reason, people thought it was okay to just stare at my poor baby. This doctor's visit was so different because she actually had spots all over her face. I looked at my beautiful girl and couldn't help but frown. This baby had no idea that people were staring at her because they thought that maybe because it's temporary, it's okay to stare. Eva was still in high spirits and smiling at everyone that made eye contact with her. What is wrong with people?!? The entire time we were in the waiting room, I could feel all eyes on my beautiful happy girl. I just wanted to scream! After that visit, it was clear that my poor baby a serious allergy to penicillin. The doctor informed me that her spots will begin to fade in a week or two!!
I can't help but be bothered by my experience at the doctor's office. I instantly turned into this mother bear, trying to protect her baby. It seems silly that I would let such an experience bother me so badly. Why does someone has to deal with the difficulties of an illness or disability and also have to worry about the stares or comments of other people?I guess, on an extremely small scale, I can understand why staring hurts individuals who have a disability. I have always been, and will continue to be very determined to teach my children all about disabilities. For instance, right now, Anders is very interested in canes. He thinks they are so fascinating. I have tried very hard to explain to him that sometime people need them when they can't walk on their own very well. The canes will help them walk. We even stop and look at the canes for sale next to the pharmacy in hopes that touching one will normalize it for him. I have noticed that he doesn't stop and stare anymore when people cross our path using canes. He understands it and it's normal to him!
Now, let me step back down off my soapbox and tell you that Eva is still covered in spots and we've decided to ride it out in the comfort of our own home. I guess it's normal for the spots to turn to a bluish/purple color that really resembles a bruise. Many of her spots have done this and I'm just waiting for the ones on her face to do the same. Can you imagine if I took her out of the house now?? If we thought people stared before, I can't even imagine how they'd stare if they thought they were bruises...in that case, rightfully so!





7 comments:
oh my heck, poor baby! and poor mom! I am so sorry :( I hope she gets feeling better and that her rash goes away. Hearing about this makes me so sad....and to add staring moms makes it even worse. I am so sorry. Praying Eva the Diva is back to her happy healthy self very soon.
love ya
Poor Diva!!!! We feel so bad for her. Mom said she looked like she was miserable. I can't possibly imagine how you feel. I remember when I would go to the mall with Maria when Britton was a baby and he had that red spot on his nose. It would make me so mad that people, especially adults would stare. I feel for you and hope everything gets back to normal soon. We love you!!!
The same thing happened to my youngest two weeks ago! The stares were more sympathetic on my side though...more, "oh poor thing." But I had to take him with me to get fingerprinted for a new job and the cop took a double look and back away. I said super annoyed, "He's not contagious." So sad. The spots grew together and were gone by day five. So sad when his whole belly looked a a giant bruise! I know what you are going through! He didn't sleep well at all for the whole week. Did they say it was called Erythema Multiforme One? My doctor (not my real doc, just the emergency doc) said it was just a side effect, but everything online said it was an allergic reaction. Anyway, I have the same pics of my spotted leper child on my blog. Hope she gets feeling better!!
Hello, welcome to my world. I sometimes feel so bad making Jackson go back in to the house to get a hat when we go out in public. If I don't, people are relentless. It is really hard. When he was bald I noticed that whenever we were in public-not much around family- he would duck his head into my arm to avoid the stares. It was really hard on us with Britton, however it is harder when they know that people are staring and it effects their self esteem like a 10 year old does. FYI. Jackson had the same thing happen to him when we was 18 months old. We have never given him penecillin since. It is miserable. Jackson's face was so swollen. Poor Eva.
poor little girl! im so sorry
oh my gosh...poor babies...you and her. how sad.
This rash breaks my heart. Poor girl!
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